tag:blogger.com,1999:blog-10081281.post4107105024590331316..comments2024-03-10T11:27:23.742-07:00Comments on At Risk for Huntington's Disease: An experiment and a deathGene Veritashttp://www.blogger.com/profile/10911736205741688185noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-10081281.post-89846990128120593772009-10-08T22:31:04.211-07:002009-10-08T22:31:04.211-07:00I was just doing some research on HD when I came a...I was just doing some research on HD when I came across your site. I was deeply moved by your latest post. I wanted to send my heartfelt condolences to you. I'm at risk and lost my father to HD this past summer. One of my brothers was just diagnosed earlier this week. I've known for some time that he was symptomatic but he refused to seek help. So I'm actually very relieved that he has finally been diagnosed and is receiving care. It's always a relief when I come across someone else who is dealing with this devastating disease. There is so much denial, fear and anger surrounding it. Thank you for sharing your experiences.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-81788170503506143872009-10-05T18:03:33.034-07:002009-10-05T18:03:33.034-07:00Please accept my condolences to you and your famil...Please accept my condolences to you and your family on the loss of your father. You are doing a great thing having your own private memorial service. It's too bad that your sister is so afraid of her potential future that she lashes out this way. There's nothing you can do about her, stay strong for your battle. God bless you and yours.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-31146675233283385302009-10-04T10:14:15.523-07:002009-10-04T10:14:15.523-07:00Gene, I am so sorry about your father's passi...Gene, I am so sorry about your father's passing. I am also very saddened that your sister and her family would be so insensitive and selfish. <br />It is so heartbreaking to lose a parent but in your situation it is even more heartbreaking...not having your own sister to share the pain with and to even talk to about it. I feel so bad for you. Thank God you have a wonderful wife and good friends.<br />Thank you so much for sharing about your MRI and other testing experiments. It is good to know what you are experiencing so that I can be prepared when I start participating in the experiments also. <br />By the way...it is awesome that you know your daughter is negative for HD. What a blessing that is.<br />Sincerely,<br /><br />LPAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-18683754685267069172009-10-04T06:03:06.313-07:002009-10-04T06:03:06.313-07:00Such a beautiful post! Thank you. My heart goes o...Such a beautiful post! Thank you. My heart goes out to you and know that you and your family are in my prayers. You and your wife came up with a brilliant way to mourn your father under very difficult circumstances. May it be an example to other families of how to deal with denial and fractured family relationship. <br /><br />And thank you also for the description of your day of testing. Hopefully it will encourage other gene positive individuals to take part in the testing. <br /><br />You are a very brave soul and God has blessed you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-84109639458100512122009-10-03T21:31:19.217-07:002009-10-03T21:31:19.217-07:00Gene -- You are a warrior in your own right and th...Gene -- You are a warrior in your own right and the price you pay to go after this disease is an inspiration to us all. I grieve with you at this, another loss and continue to pray for you and your family. In many ways, perhaps your sister has become a casualty of war...unable to fight -- whether because of denial or disease...only time will tell.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-28984980804582030762009-10-03T19:48:26.984-07:002009-10-03T19:48:26.984-07:00Gene your father would be proud and I am sure he w...Gene your father would be proud and I am sure he was with you on that warm day and he will be with you always. My sympathy to you and yours. Stay strongAnonymousnoreply@blogger.com