tag:blogger.com,1999:blog-10081281.post5435655872701601542..comments2024-03-10T11:27:23.742-07:00Comments on At Risk for Huntington's Disease: Six cool L.A. ladies ‘bare the truth’ about Huntington’s disease, highlighting an exceptionally creative year for advocacyGene Veritashttp://www.blogger.com/profile/10911736205741688185noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-10081281.post-74826349020891676412017-02-11T19:23:07.069-08:002017-02-11T19:23:07.069-08:00I want to post something before I decide not to ou...I want to post something before I decide not to out of shyness. I read your blog and emphasize in many ways. I have a sclerosing neurological illness with intractable neurological pain. I was diagnosed with Lupus and MS a few years later. I can't remember where I first read about HD, but it captured something for me, the incredible strength of humanity fighting against inhumanity maybe. I was in a coma last year and run up against some serious discrimination in my school (if i have to go to the hospital and withdraw from a semester they're going to ask me to leave, I was told not to talk about continuing to struggle on my application back, etc). In a way I suppose I've been more effected than you if you haven't had symptoms yet, but knowing my reality as can be seen by progressions on MRIs...i know what the future looks like. I still plan for a future, though. I am getting my genetics class to watch a film or documentary on HD (probably in 3 weeks around) and was wondering if you had any recommendations? You can email me at Adreamofform@gmail.com if you want--id like it, although you certainly don't have to! Oh--Im a female, 30, if you were wondering! <br />Best,<br />JAnonymoushttps://www.blogger.com/profile/11585231296266751344noreply@blogger.comtag:blogger.com,1999:blog-10081281.post-91211284505805807472014-12-30T03:50:01.260-08:002014-12-30T03:50:01.260-08:00Enjoyed your blog post, as always. Thanks for rais...Enjoyed your blog post, as always. Thanks for raising awareness and, more significantly, thanks for supporting the HD community.<br /><br />Best,<br />AllieAnonymousnoreply@blogger.com