tag:blogger.com,1999:blog-10081281.post6141882911160260788..comments2024-03-10T11:27:23.742-07:00Comments on At Risk for Huntington's Disease: Outrage over video of police’s rough handling of man with Huntington’s disease spurs calls for justice, awarenessGene Veritashttp://www.blogger.com/profile/10911736205741688185noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-10081281.post-930214165800224882017-04-22T11:05:24.947-07:002017-04-22T11:05:24.947-07:00My brother wrote this song and designed these shir...My brother wrote this song and designed these shirts. My mom enjoyed wearing them, because they are humorous and educational.<br /><br />http://www.hdblues.org<br /><br />The front says - "NO, SIR, I AM NOT DRUNK"<br />The back says - "I suffer from a genetic progressive neurodegenerative disease causing gradual deterioration of movement, cognitive function, emotional control, blurring of social boundaries and inherited in an autosomal dominant pattern…. Are we good?”Lynellehttps://www.blogger.com/profile/08410125760752454381noreply@blogger.comtag:blogger.com,1999:blog-10081281.post-14962765487503254932016-08-17T13:04:58.253-07:002016-08-17T13:04:58.253-07:00My brother in jail was beaten severely. He has HD ...My brother in jail was beaten severely. He has HD also.<br />Anonymoushttps://www.blogger.com/profile/17705494265164905144noreply@blogger.comtag:blogger.com,1999:blog-10081281.post-48502546915248019772015-01-31T00:30:30.002-08:002015-01-31T00:30:30.002-08:00With two brothers now presenting HD symptomatic, I...With two brothers now presenting HD symptomatic, I feel they too are at risk of being mistaken for being drunk or intoxicated in some way. Chorea symptoms, and the stumbling and unsteady gait, truly can be misinterpreted as being drunk. Then the other symptoms, anxiety, confusion etc, do not help in situations like we have seen on this video. Due to such sadness, I could not watch it until the end. I praise the lady who videoed this, and the attention it has received. I am in Perth, Australia and have been involved with our HD Assoc. I would like to know if maybe that police dept has in some way assisted in raising awareness or fundraising - this could be such a help in 'healing'. What a terrible, terrible incident for all involved. It really hurts me, and I dread that it may happen to my brothers also. I will be contacting the people involved with this video, thanks. Sandy HudsonAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-16616084540710547062014-10-13T19:06:37.838-07:002014-10-13T19:06:37.838-07:00The problem is that HD persons, families, even the...The problem is that HD persons, families, even their organisations are too inclined to remain in the closet. I was a medical social worker who new always extra about various conditions except HD until I did a 9 mth locum for a state HD organisation. Never had before knowingly even come across anyone with HD. I do understand why police with their injury and death rate can be jumpy, kids involved etc., though still a bit too much.<br />The person I blame is the mother for leaving him with the kids alone once his disease had reached the point where he can have difficulty responding to any unanticipated complexity. By all means keep up his activities and outings with his kids, but don't leave him alone with them. Take them with you or have another adult be with him with the kids.Hope he now wears something that does indicate his cindition, not just for polce, but were an accident that got him to hospital so medically treated more safely. Not all HD persons can be by their reactions be identified as such regardless of learning about the condition.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-27737152160079055522014-09-29T15:12:02.681-07:002014-09-29T15:12:02.681-07:00My husband has H.D. also. He walks alot and when t...My husband has H.D. also. He walks alot and when the police see him they seem to think that he's drunk. All police departments need to be educated as to what H.D. is and how it affects people. And they need to see this video!! It not only affects the one that has it but all family members to! Maybe wearing a medical I.d. bracelet or carrying a card might help. That is if the police don't jump to conclusions (as they have many times in my husband's case) and just assume the person is drunk or being combative. This video is not only appalling but completely sad.. I would say to the police that it's called INVOLUNTARY MOVEMENTS!! Get educated about H.D.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-20772984895313881882014-09-24T13:47:29.609-07:002014-09-24T13:47:29.609-07:00I was wondering who was looking after the children...I was wondering who was looking after the children while the cops were sitting on this man? And what about the person/s who called 911? I hope they have some guilt associated with this kind of see something say something. Reminds me of stories a friend told me about living in Nazi occupied Europe. Hurrah to brave people who record this kind of brutality. Protect and Serve - what a lot of baloney. Bullies with guns and overstimulated male hormones.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-63836256765975664192014-09-24T12:56:18.728-07:002014-09-24T12:56:18.728-07:00There is a need to re-establish professional stand...There is a need to re-establish professional standards in this department. The public officials who indicated that the standards were not going to be reviewed need to be reviewed by the public. If our designated agents fail at their jobs, our duty as citizens is to terminated their elected or appointed status.<br /><br />This incident of inhumanity gives those of us in the public service sector a bad reputation.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-28678656143702418322014-09-24T11:04:12.823-07:002014-09-24T11:04:12.823-07:00Personally, the officers' concern for the chil...Personally, the officers' concern for the children is a sham. Apparently they left them unattended for as much as 10 minutes. An infant can die of SIDS in that amount of time. Not to mention the trauma to such young minds. I would add that being attacked, maced and not knowing what was happening to his young children would have flooded Bane's mind with stress hormones at levels that incapacitate frontal cortex (executive function) thinking. He was easily in too much pain and distress to think of telling the officers he has HD. Virginia Cotts RN BSNGinny in COhttps://www.blogger.com/profile/01443510557298085556noreply@blogger.comtag:blogger.com,1999:blog-10081281.post-27080762122561918322014-09-18T08:29:00.263-07:002014-09-18T08:29:00.263-07:00I had to tell people that I fell because I was to ...I had to tell people that I fell because I was to embarrassed to admit that I was assaulted by several Police Officers. My whole body and face were black and blue for weeks.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-7388125931830932882014-09-18T08:25:26.887-07:002014-09-18T08:25:26.887-07:00Something like this happened to me a couple of mon...Something like this happened to me a couple of months ago. I'm HD positive too. Anonymousnoreply@blogger.com