tag:blogger.com,1999:blog-10081281.post8259347019920833905..comments2024-03-10T11:27:23.742-07:00Comments on At Risk for Huntington's Disease: A restless soul at the HD research meetingGene Veritashttp://www.blogger.com/profile/10911736205741688185noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-10081281.post-10186200037635813132010-05-25T15:31:59.707-07:002010-05-25T15:31:59.707-07:00Gene,
I love your blog...I am 28 years old, and ...Gene, <br /><br />I love your blog...I am 28 years old, and am at risk. I have been searching for someone else's "thoughts" on being at risk/positive for HD... Thank you for sharing your life and what has been on your mind! <br /><br />I didn't realize that this month was HD Awareness month! If I hadn't stumbled upon your blog, I'd have never known!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-68440443671629207052010-02-24T09:05:49.327-08:002010-02-24T09:05:49.327-08:00Your blog has been a true Godsend for me to find. ...Your blog has been a true Godsend for me to find. I thank you for writing this and helping so many people during the past 5 years.<br />I am ashamed to say I had never heard of Huntington's Disease. Not until I got into a relationship with the kindest, most caring man I could ever wish to meet. He told me he is at risk for HD, the 50% chance, and he is too afraid to test. He is 33 and I find myself looking for symptoms, which I know is bad of me. I feel I care too much to ever leave him.<br />I pray every day for a cure.<br />I am so happy to hear that you have not seen any symptoms at 50. My boyfriend's mom developed it at 60. I believe you will go this next decade and not see a symptom. And our next decade, there will be much better treatment and we will see a cure.<br /><br />It is people like you who make this world a good place. If only there were more others like yourself.<br /><br />My prayers are with you and your family. I'm glad you have an amazingly wonderful wife like you so deserve. Take care and thanks for keeping us all posted here on the latest research.<br /><br />-Thankful in NYCityAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-46647665963058971162010-02-14T17:12:04.792-08:002010-02-14T17:12:04.792-08:00What an incredible experience Gene. I was right t...What an incredible experience Gene. I was right there with you feeling the very same hesitations, worries, and looking for the pros to arrive, but it's a difficult thing to find positives in such a huge realm of possibilities, but at the same time...it's easy to find possibilities because there is a factor called "HOPE". We all have it, we want to know more, and I'm ever so delighted to continue reading on through your blog for my soul is restless too. As a Gene positive woman (one of 10 children and over 44 direct "At Risk family members) I have my heart and soul "Invested". <br /><br />SusanSusan Elainenoreply@blogger.com