tag:blogger.com,1999:blog-10081281.post5482803175537988208..comments2024-03-10T11:27:23.742-07:00Comments on At Risk for Huntington's Disease: The complications and stress of successGene Veritashttp://www.blogger.com/profile/10911736205741688185noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-10081281.post-61626969439401210662008-04-14T05:33:00.000-07:002008-04-14T05:33:00.000-07:00i have a quesion bu im not sure how to word it. ca...i have a quesion bu im not sure how to word it. can employer look into your family medical history and see someone in our family had it and not give u a job based on that?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-30439160068870487992007-10-03T09:40:00.000-07:002007-10-03T09:40:00.000-07:00I understand your feelings and recently wrote my o...I understand your feelings and recently wrote my own blog post on dealing with not only my possible HD condition but my fathers diagnoses. <BR/><BR/>Everything about the disease is unfair but you have to decide how you want to live your life and not be governed by fear. I was motivated by the fear and not thinking clearly. Today I live my life with the future in mind and to the fullest possible. Wish you the very best. <BR/><BR/>wtfyme.comWebrep Tweakhttps://www.blogger.com/profile/12225018898197408783noreply@blogger.comtag:blogger.com,1999:blog-10081281.post-10432415140371540522007-09-11T09:34:00.000-07:002007-09-11T09:34:00.000-07:00Taking the new job certainly will add to your stre...Taking the new job certainly will add to your stress. Moving away from friends will also be difficult. These will be your support network when you do show symptoms. Having a support network is incredibly important. My sister in law had to move her family due to financial reasons. Her husband has HD. While they are in great financial shape where they are now, it is very difficult taking care of her family without the support network of friends and church members that she had previously.<BR/><BR/>One thing on the pro side of taking the new job: will the added prestige help in advocacy for HD awareness and cure? Think of it: if Jack Welch, shift worker in a factory announced he had HD, who would care, except his small circle of family and friends? But if Jack Welch, CEO of General Electric announced he had HD, everybody would hear about it. Plenty of people would suddenly be willing to give time and money to the cause. I'm not saying your new job would have that same level of fame and prestige, but you get the picture.<BR/><BR/>At any rate, it is a very tough decision. HD steals so much from all of us.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-10248010198530416942007-09-10T09:41:00.000-07:002007-09-10T09:41:00.000-07:00I'm a working actor living in LA.If there's one th...I'm a working actor living in LA.<BR/><BR/>If there's one thing being an actor has taught me is that you really have take each day as it comes. There's so much uncertainty and rejection in the business it's easy to get down on yourself. <BR/><BR/>Especially when I try to predict the future. I have no idea if and when my phone will ring. I just have to hope and pray that it does.<BR/><BR/>It drives my wife (who is not an actor) nuts. She wants to plan for the future and I really can't.<BR/><BR/>What I can do, when I'm not working, is spend time with our three year old son. Yesterday we assembled a bookshelf from Ikea together. Later we made banana bread. <BR/><BR/>It doesn't sound like much, but it was a great day. <BR/><BR/>And I never could have planned it.<BR/><BR/>Taking the short view has really helped me cope with HD. I'm gene positive. I've got a few more good years, but who the hell really knows what's going to happen?<BR/><BR/>All I can do to is make the most of each and every day.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-10081281.post-9723326966873280692007-09-10T02:41:00.000-07:002007-09-10T02:41:00.000-07:00Coincidentally - I have also recently been in the ...Coincidentally - I have also recently been in the middle of a bit of a job dilemma. I have really struggled with whether to go for it or not - the extra money and step up into management could help us to better afford PGD IVF. But it would mean longer hours, more stress and much less job satisfaction. <BR/><BR/>It's much less complicated than your situation but the knowledge of being HD positive is undoubtedly influencing my decision just as it is yours. I am not going to apply for the job - although we could really do with the money, I don't want my life to be about work and I don't want any more stress. <BR/><BR/>I thought, when I made and remade this decision (because I keep going over it still), that maybe my career ambition had died when I got those results. But I don't think it has - there are different opportunities in my current position which I will take advantage of because I do like my current job and there is still a lot of scope within it.<BR/><BR/>Good luck with it. It sounds like a very difficult decision when things are so uncertain and because of the distance involved. If you stay, you're going to have to work hard not to be forever wondering. And if you go, you're going to have to work hard not to be watching your every step in case it has started. <BR/><BR/>Lots of love<BR/>Angela xAngela_Fhttps://www.blogger.com/profile/07683066175749634446noreply@blogger.com