Sunday, November 19, 2006

Handling the news

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Angela F., author of the blog A Survivor’s Guide to Huntington’s Disease? , learned on November 8 that she had tested positive for the genet...
3 comments:
Friday, October 27, 2006

Mourning mom

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It has been almost nine months since I’ve written in this blog. Last March I began to write the following: My mother died in her sleep on Fe...
5 comments:
Wednesday, February 01, 2006

Saying good-bye to Mom

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My father decided last week that he did not want my mother, who has had Huntington’s disease for about 15 years, to have a feeding tube. My ...
2 comments:
Thursday, January 26, 2006

Should Mom get a feeding tube?

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My HD-stricken mother was rushed from her nursing home to the emergency room last week because of dehydration. She spent almost a week there...
1 comment:
Sunday, December 18, 2005

A Huntington's Christmas story: ten years of wondering

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For the past ten years Christmas has come with a tinge of sadness in our family, as we remember the bad news about my mother. It was the day...
Friday, December 02, 2005

A Thanksgiving visit: a time to reflect on HD

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My dad traveled to visit for Thanksgiving, bringing the stark reality of my mother’s affliction with Huntington’s disease into our household...
Saturday, September 24, 2005

Dr. Martha Nance to do live chat on HD

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Monday, Sept. 26, at 1 p.m. ET Outlook: Huntington's Disease Incurable Disease Looms Before Those With Gene Dr. Martha Nance Struthers P...
1 comment:

An uncertain journey along the genetic trail

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This article about me is in the September 25, 2005 edition of The Washington Post . I will comment on it in my next entry. washingtonpost.co...
Tuesday, July 19, 2005

Planning for Mom's move to a nursing home

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My family faces a moment almost as difficult as an impending death: My sister, my father, and I are about to make the wrenching decision to ...
4 comments:
Thursday, May 05, 2005

Preparing for a lonely day

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One of my deepest fears about Huntington’s disease is knowing that there could come a day when my wife cannot take care of me. If I follow i...
2 comments:
Monday, April 25, 2005

The ups and downs of waiting for a cure

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Waiting for news of an effective treatment or a cure is one of the most nerve-wracking aspects of living at risk for Huntington’s disease. W...
1 comment:
Friday, March 25, 2005

Seeing Mom (Part II): a family's emotions

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I previously wrote of the terrible difficulties resulting from the way Huntington’s disease has immobilized my mother. During my visit to my...
3 comments:
Thursday, March 24, 2005

Seeing Mom (Part I): falling down

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My mother cannot walk anymore. That was one of the stark outcomes of Huntington’s disease that I witnessed during a four-day visit to my hom...
Saturday, March 12, 2005

What is wrong with Grandma?

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Because my mother has HD and is incontinent, she can no longer travel on an airplane to visit me and my family. So next week I’m taking my 4...
1 comment:
Tuesday, March 01, 2005

HD's financial devastation

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HD is not just a threat to my health. It colors practically every decision my wife and I make about our finances. The other night an acquain...
Monday, February 14, 2005

To go – or not to go – public

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Should I go public with my at-risk status? That’s a question I’ve thought a lot about since I discovered nine years ago that my mother had H...
Saturday, February 12, 2005

At risk, but not alone

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It’s hard to be optimistic when writing about Huntington’s disease. The immense suffering and stress caused by this malady weigh heavily in ...
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Thursday, February 03, 2005

Giving up my dreams

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Huntington’s disease hits people in their prime. Knowing that the genetic defect is harming my brain and that I need to prepare for the day ...
1 comment:
Thursday, January 27, 2005

Overcoming HD's tyranny of time

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It’s been more than two weeks since I’ve written here. The reason I’ve taken so long to return is, quite simply, time. After death, time i...
Tuesday, January 11, 2005

Learning about HD

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This blog is mainly to be a chronicle about my experiences in living at risk for HD, and a place for people to share their thoughts about th...