Sunday, March 16, 2008

Keeping calm in the face of Huntington's

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Living at risk for Huntington’s disease often causes me to try too hard to take care of myself. I’ve always been a bit of a hypochondriac an...
1 comment:
Saturday, December 29, 2007

Stem cells: the dawn of a new era for Huntington’s disease research

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The campaign for stem-cell research on Huntington’s disease took an important step forward on December 12. The 29 members of the governing b...
2 comments:
Sunday, September 09, 2007

The complications and stress of success

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Living with a positive test result for the Huntington’s disease gene requires a constant juggling of life’s many demands and opportunities. ...
5 comments:
Monday, April 02, 2007

Dreaming of victory

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The night after I wrote my previous entry (click here to read the article) on the New York Times’ recent front-page article on Huntington’...
2 comments:
Sunday, March 18, 2007

Huntington's makes page one

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Today was a very important moment for building awareness about Huntington’s disease: the New York Times , one of the world’s most influentia...
2 comments:
Friday, March 16, 2007

Testing a new service

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Dear Friends, I now have close to 500 people who receive news of my blog via my e-mail, stophuntingtonsdisease@yahoo.com . That's a lot ...
Tuesday, March 13, 2007

Uncertainty and a steadfast spouse

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The forgotten people in the story of Huntington’s disease are the spouses and potential spouses of those at risk. Practically all of the ene...
5 comments:
Saturday, February 17, 2007

Coming together

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It’s been a year since my mother died of Huntington’s disease, on February 13, 2006. The call from my sister about her death came in the mid...
5 comments:
Sunday, November 19, 2006

Handling the news

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Angela F., author of the blog A Survivor’s Guide to Huntington’s Disease? , learned on November 8 that she had tested positive for the genet...
3 comments:
Friday, October 27, 2006

Mourning mom

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It has been almost nine months since I’ve written in this blog. Last March I began to write the following: My mother died in her sleep on Fe...
5 comments:
Wednesday, February 01, 2006

Saying good-bye to Mom

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My father decided last week that he did not want my mother, who has had Huntington’s disease for about 15 years, to have a feeding tube. My ...
2 comments:
Thursday, January 26, 2006

Should Mom get a feeding tube?

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My HD-stricken mother was rushed from her nursing home to the emergency room last week because of dehydration. She spent almost a week there...
1 comment:
Sunday, December 18, 2005

A Huntington's Christmas story: ten years of wondering

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For the past ten years Christmas has come with a tinge of sadness in our family, as we remember the bad news about my mother. It was the day...
Friday, December 02, 2005

A Thanksgiving visit: a time to reflect on HD

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My dad traveled to visit for Thanksgiving, bringing the stark reality of my mother’s affliction with Huntington’s disease into our household...
Saturday, September 24, 2005

Dr. Martha Nance to do live chat on HD

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Monday, Sept. 26, at 1 p.m. ET Outlook: Huntington's Disease Incurable Disease Looms Before Those With Gene Dr. Martha Nance Struthers P...
1 comment:

An uncertain journey along the genetic trail

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This article about me is in the September 25, 2005 edition of The Washington Post . I will comment on it in my next entry. washingtonpost.co...