Thursday, June 12, 2008

Huntington's disease, destroyer of families

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When my mother died of Huntington’s disease 28 months ago, she became but the first victim of the disease in our family. The stark tr...
4 comments:
Tuesday, April 22, 2008

Building a ‘laser-guided missile’ to attack Huntington’s disease

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Isis Pharmaceuticals, Inc. , a world leader in developing technology to attack the genetic causes of diseases, is now engaged in the fight t...
5 comments:
Wednesday, April 09, 2008

Observing the cure in progress

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In a couple of hours I will tour the innards of the company that could save me from the ravages of one of the cruelest diseases to afflict h...
2 comments:
Sunday, April 06, 2008

Time for optimism: a cure for Huntington's could be near

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On October 26, 2007 a California pharmaceutical company announced a multi-million-dollar project to develop a drug that would eliminate the ...
8 comments:
Sunday, March 16, 2008

Keeping calm in the face of Huntington's

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Living at risk for Huntington’s disease often causes me to try too hard to take care of myself. I’ve always been a bit of a hypochondriac an...
1 comment:
Saturday, December 29, 2007

Stem cells: the dawn of a new era for Huntington’s disease research

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The campaign for stem-cell research on Huntington’s disease took an important step forward on December 12. The 29 members of the governing b...
2 comments:
Sunday, September 09, 2007

The complications and stress of success

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Living with a positive test result for the Huntington’s disease gene requires a constant juggling of life’s many demands and opportunities. ...
5 comments:
Monday, April 02, 2007

Dreaming of victory

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The night after I wrote my previous entry (click here to read the article) on the New York Times’ recent front-page article on Huntington’...
2 comments:
Sunday, March 18, 2007

Huntington's makes page one

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Today was a very important moment for building awareness about Huntington’s disease: the New York Times , one of the world’s most influentia...
2 comments:
Friday, March 16, 2007

Testing a new service

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Dear Friends, I now have close to 500 people who receive news of my blog via my e-mail, stophuntingtonsdisease@yahoo.com . That's a lot ...
Tuesday, March 13, 2007

Uncertainty and a steadfast spouse

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The forgotten people in the story of Huntington’s disease are the spouses and potential spouses of those at risk. Practically all of the ene...
5 comments:
Saturday, February 17, 2007

Coming together

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It’s been a year since my mother died of Huntington’s disease, on February 13, 2006. The call from my sister about her death came in the mid...
5 comments:
Sunday, November 19, 2006

Handling the news

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Angela F., author of the blog A Survivor’s Guide to Huntington’s Disease? , learned on November 8 that she had tested positive for the genet...
3 comments: