Thursday, July 23, 2009

A new attitude about Huntington’s disease

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The words come like a slap in the face: I already have Huntington’s disease . Even though I do not yet have the classic, overt symptoms of t...
2 comments:
Tuesday, July 14, 2009

Great reasons to be a guinea pig

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Huntington’s disease is a 100-percent genetic condition, so, because I tested positive for this brain disorder, I have no control over its c...
Tuesday, July 07, 2009

A life-or-death walk into the future

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On June 15, 2009, I walked again into the epicenter of what could be the first treatment for Huntington’s disease: the Isis Pharmaceuticals,...
Wednesday, June 24, 2009

The time is ripe

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Although I am gene-positive for Huntington’s disease and could very soon develop its dehumanizing symptoms, I feel immensely privileged to l...
2 comments:
Monday, May 25, 2009

To flee or to fight

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People respond to a diagnosis of Huntington’s disease in many ways, ranging from complete denial to optimism about the research for a cure. ...
5 comments:
Saturday, May 16, 2009

HD: hurtling towards death

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Knowing that the first, subtle, and practically imperceptible symptoms of Huntington’s disease are most likely already at work in my brain a...
7 comments:
Sunday, April 26, 2009

A Huntington's warrior lays down his shield

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My father, who is 81 and ailing, was one of those unsung Huntington’s disease caregivers who quietly dedicate themselves to a spouse. I thin...
Sunday, April 19, 2009

Our economic comeback and the cure industry

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As the unemployment lines grow and our economic crisis deepens, America’s leadership of the world comes into question. Can a country that li...
2 comments:
Saturday, April 11, 2009

A holiday message: hope for the forsaken of Huntington’s

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Growing up Catholic, I was always both bewildered and impressed by Jesus’s words on the cross on Good Friday: “My God, my God, why have you ...
2 comments:
Saturday, April 04, 2009

In a time of crisis, the best investment of all

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The economic crisis threatens to end our leadership of the world’s financial system and erode our standard of living. We have borrowed too m...
4 comments:
Monday, September 15, 2008

Disease, denial, and support: the many kinds of family

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Huntington’s disease, a cruel and fatal illness with no treatment or cure, triggers the best and worst in people’s ways of facing adversity....
6 comments:
Thursday, August 28, 2008

The roots of our stigma

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Huntington’s disease carries a huge stigma. Many families with HD cover it up, and many face discrimination. Surrounded by fear and ignoranc...
1 comment:
Thursday, June 12, 2008

Huntington's disease, destroyer of families

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When my mother died of Huntington’s disease 28 months ago, she became but the first victim of the disease in our family. The stark tr...
4 comments: