Sunday, October 25, 2009

Creating hope

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Living at risk for Huntington’s disease frequently leaves me emotionally drained. Sometimes I fantasize that it’s all just a nightmare from ...
3 comments:
Tuesday, October 13, 2009

My new profession: HD activist

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The threat of Huntington’s disease in a gene-positive person’s life cuts down many hopes and dreams, including the drive for professional su...
4 comments:
Saturday, October 03, 2009

An experiment and a death

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On September 25, as I went through two different MRI machines and a battery of psychological tests aimed at detecting changes in my brain ca...
6 comments:
Wednesday, September 23, 2009

The unending 'thank you'

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Make no mistake about it, living at risk for a debilitating brain disorder like Huntington’s disease is a harrowing experience. During the p...
Saturday, September 19, 2009

In the midst of the hurricane

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When I write about my experiences living at risk for Huntington’s disease, the themes usually hit me in the face. But sometimes so much is h...
1 comment:
Thursday, August 27, 2009

Imagining a world without Huntington's

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Today I write with the raw emotion of a son on the verge of losing his father and yearning for a world without Huntington’s disease. I want ...
5 comments:
Thursday, August 20, 2009

Pondering an exit from the HD closet

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Huntington’s disease forces gene-positive people like me to live many paradoxes. One of the most difficult involves the challenge of going p...
1 comment:
Sunday, August 02, 2009

Ten years after the test

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Life goes in cycles, and so do our memories. Lately I’ve been thinking a lot about the tenth anniversary of when I tested positive for the g...
6 comments:
Thursday, July 23, 2009

A new attitude about Huntington’s disease

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The words come like a slap in the face: I already have Huntington’s disease . Even though I do not yet have the classic, overt symptoms of t...
2 comments:
Tuesday, July 14, 2009

Great reasons to be a guinea pig

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Huntington’s disease is a 100-percent genetic condition, so, because I tested positive for this brain disorder, I have no control over its c...