Sunday, February 14, 2010

A restless soul at the HD research meeting

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Curing a devastating and complex illness like Huntington’s disease requires a team built of some of the world’s top scientists. To that end,...
3 comments:
Friday, February 05, 2010

A Super Sunday HD story

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On Super Sunday some 100 million Americans will watch some of the greatest athletes on the planet compete for the championship of the Nation...
7 comments:
Sunday, January 31, 2010

Telling the truth about a disease

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Since testing positive for Huntington's disease almost eleven years ago, I have focused intensively on five people. First, I worried abo...
4 comments:
Sunday, January 24, 2010

When the pain brings a smile

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Today I write in tribute to my wife and to the tens of thousands of other individuals around the world who face the prospect of seeing a spo...
2 comments:
Thursday, January 14, 2010

Squeezing in the life

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Because I am gene-positive for Huntington’s disease, I know my time could be extremely limited. As a result, I’m squeezing as much as I can ...
2 comments:
Wednesday, December 02, 2009

Feel the love: a family faces juvenile Huntington’s disease

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I could feel the love flowing in the Leach family for 12-year-old Terry, who struggles against the ravages of juvenile Huntington’s disease....
2 comments:
Wednesday, November 25, 2009

Smelling the flowers at Thanksgiving

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Thanksgiving is a time to slow down and reflect on all the good in our lives. As I wonder about when I will follow in my deceased mother’s f...
1 comment:
Sunday, November 15, 2009

No time for fear

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Knowing that I will almost certainly develop a devastating brain disease, how do I deal with fear? A good friend posed that question to me o...
3 comments:
Sunday, October 25, 2009

Creating hope

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Living at risk for Huntington’s disease frequently leaves me emotionally drained. Sometimes I fantasize that it’s all just a nightmare from ...
3 comments:
Tuesday, October 13, 2009

My new profession: HD activist

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The threat of Huntington’s disease in a gene-positive person’s life cuts down many hopes and dreams, including the drive for professional su...
4 comments:
Saturday, October 03, 2009

An experiment and a death

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On September 25, as I went through two different MRI machines and a battery of psychological tests aimed at detecting changes in my brain ca...
6 comments: