At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Thursday, August 05, 2010

Traveling across America, togetherness and memories

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Living gene-positive for Huntington’s disease has taught me to value each and every moment of life, from the most humdrum to the most exhila...
2 comments:
Monday, June 14, 2010

Charting new territory: going public about HD

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On June 10, for the first time ever, I revealed in public that I am gene-positive for Huntington’s disease. It’s been a long road – from the...
11 comments:
Monday, June 07, 2010

God, Huntington's disease and the meaning of life

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(This entry is dedicated to the physicians and scientists seeking treatments and a cure for HD.) Summary How could God allow people to suffe...
7 comments:
Wednesday, May 26, 2010

'Dad, could you get HD?'

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On May 17 I came out to my nine-year-old daughter about Huntington’s disease: I revealed that I was gene-positive. My daughter already knew ...
2 comments:
Thursday, May 20, 2010

A perfect day: the sunset of a meaningful life

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To live at risk for Huntington’s disease means to partake of a world with frequent news of premature death. Naturally, those of us in the HD...
3 comments:
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