At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Thursday, July 28, 2011

No time for complacency: get ready for HD clinical trials

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In the past few years, scientists have made huge strides towards treating and perhaps even controlling Huntington’s disease, whose killer ge...
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Friday, July 08, 2011

Some reflections on being named 'HDSA Person of the Year'

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With a feeling of great humility and immense responsibility I received the news that the Huntington’s Disease Society of America (HDSA), at...
6 comments:
Tuesday, June 21, 2011

Face to face at the Huntington's disease convention

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I’ve known about Huntington’s disease ever since my mother’s diagnosis in 1995. For just about as long, I’ve been affiliated with the Huntin...
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Wednesday, June 08, 2011

The Huntington's disease high-wire act

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As a carrier of the gene for a deadly brain disease, I fight back with the instinctual urge for survival. I dread the threat of that incurab...
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Saturday, May 28, 2011

S.O.S. for Huntington's disease families, and an important bill in Congress

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Huntington’s disease ravages the brains and bodies of its victims, usually leaving them utterly dependent on others. Whereas a child matures...
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Wednesday, May 25, 2011

Holding the potential cure in my hand

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After telling yet another audience of scientists about my family’s two-decade struggle against Huntington’s disease, I held a potential cure...
8 comments:
Wednesday, May 11, 2011

The Huntington’s community rising and converging

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In the quest to end one of humanity’s cruelest conditions, the Huntington’s disease community is coalescing as never before. As one ind...
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