At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Monday, October 31, 2011

Huntington’s disease in the news and entertainment media – Part I: Stigma and genetic testing

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Despite its status as an orphan disease unknown to many, Huntington’s disease occasionally comes into focus in the mainstream news media and...
Friday, October 21, 2011

Huntington’s disease and the financial jitters

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As I’ve written before, living with the deadly gene for Huntington’s disease is like a high-wire act . Fearful that HD’s terrible symptoms c...
Monday, October 10, 2011

BDNF and ‘Neurobics’: building a ‘beautiful mind’ against Huntington’s

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To avoid the onset of Huntington’s disease, whose killer gene I inherited from my mother, I must do all I can to protect my brain. In 2001, ...
3 comments:
Monday, October 03, 2011

Making sense of Huntington’s organizations, and a call for unity

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HDSA, HDF, HDDW, CHDI: a mini alphabet soup of Huntington’s disease organizations serves the families afflicted by this devastating brain di...
3 comments:
Wednesday, September 21, 2011

Waiting for symptoms: How long can I hang on?

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As someone who is gene-positive for Huntington’s disease, I live in an uncharted gray zone as I await the onset of the same kind of devastat...
11 comments:
Friday, September 02, 2011

One Man's Story: Entering the Light

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(At the invitation of the Huntington’s Disease Society of America [HDSA], I wrote this article for the September 2011 issue of the HDSA su...
1 comment:
Wednesday, August 24, 2011

Do-or-die time for Huntington’s clinical trials

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It’s do-or-die time for the Huntington’s disease community. We must meet the challenge of participating in clinical trials – or run the r...
3 comments:
Thursday, July 28, 2011

No time for complacency: get ready for HD clinical trials

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In the past few years, scientists have made huge strides towards treating and perhaps even controlling Huntington’s disease, whose killer ge...
3 comments:
Friday, July 08, 2011

Some reflections on being named 'HDSA Person of the Year'

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With a feeling of great humility and immense responsibility I received the news that the Huntington’s Disease Society of America (HDSA), at...
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