At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Sunday, January 29, 2012

To strive or to chill? Seeking balance in the fight against Huntington’s disease

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In late 1995, after I received the shocking news that my mother had Huntington’s disease, I decided to fight back for her by learning all th...
3 comments:
Monday, January 23, 2012

Advocacy pays off: Huntington’s disease stem-cell research advances in California

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Grass-roots advocacy for Huntington’s disease stem-cell research is paying off. Using funds from the state of California secured with the he...
Tuesday, January 17, 2012

Let’s turn grief for ‘HD Angels’ into new impetus for the Huntington’s cure

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The Huntington’s disease angels are sending us all an urgent message: we must redouble the effort to find effective treatments and a cure fo...
1 comment:
Sunday, January 08, 2012

Seven years of striving for a realistic and unapologetic view of Huntington’s disease

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This week marks the seventh anniversary of this blog. On January 10, 2005, I inaugurated the blog with this sentence: “My name is Gene Verit...
Monday, January 02, 2012

Striving for brave new brains

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As I turned 52 on December 31 and a new year dawned on the world, I came ever closer to onset of Huntington’s disease, the cruel killer that...
1 comment:
Sunday, December 18, 2011

Kate's untested baby (Huntington’s disease and abortion – Part II)

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Kate Sandbulte, a 20-year-old woman who lives in Iowa, long lived life to the fullest. Her mother, Tara Hansen, recalled that Kate was “was ...
8 comments:
Sunday, December 11, 2011

An angel fighting for the cure (Huntington’s disease and abortion – Part I)

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Lying in a hospital birthing room, Christina Wright held her premature infant son Timothy John awhile in her arms and, after he died, handed...
35 comments:
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Gene Veritas
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