At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Thursday, May 17, 2012

A Compassionate Allowance, and faster Social Security benefits, for the juvenile Huntington’s disease community: a key step for advocacy

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In a key step for Huntington’s disease advocacy, children and youths stricken with the juvenile form of HD will receive Social Security bene...
Saturday, April 14, 2012

From a paralyzed genius, lessons of determination and caregiving for the Huntington’s community

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In my fight to avoid the onset of Huntington’s disease, I have sought inspiration in model lifestyles, outlooks, and individuals. One of my ...
4 comments:
Monday, April 02, 2012

The Team Hope Walk: reinforcing the first line of defense against Huntington’s disease

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In the fight against Huntington’s disease, hope begins at home. That’s the message I took away from yesterday’s inaugural Team Hope Walk of ...
1 comment:
Tuesday, March 20, 2012

A new, more holistic view of Huntington’s disease: the systems/P4 approach

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When I learned in late 1995 that my mother suffered from Huntington’s disease, a disorder unknown to my family, my reaction went from perple...
3 comments:
Wednesday, March 07, 2012

The first dose is hope: moving towards treatments for Huntington’s disease

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With its incurable genetic attack on the brain, Huntington’s disease wreaks havoc on its victims and their families, leaving them helpless, ...
4 comments:
Thursday, March 01, 2012

Top researcher: ‘Genuine optimism’ about treatments for Huntington’s disease

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With several potential treatments heading for clinical trials, the head researcher of the so-called “cure Huntington’s initiative” feels “ge...
2 comments:
Tuesday, February 21, 2012

It’s time for the Huntington’s community to speak out – and HDSA is listening

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The HD community has a golden opportunity to both strengthen and shape the future of the Huntington’s Disease Society of America (HDSA) and...
2 comments:
Thursday, February 16, 2012

The quandary of denial in the Huntington’s disease community (Part II)

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The fear of confronting the devastating, incurable, and ultimately deadly symptoms of Huntington’s disease, coupled with its terrible stigma...
1 comment:
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Gene Veritas
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