At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Tuesday, September 24, 2013

Reaching out to the ‘HD family’ at the World Congress on Huntington’s Disease

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As I returned on the plane from Brazil and the sixth World Congress on Huntington’s Disease, held September 15-18 in Rio de Janeiro, I was ...
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Thursday, September 12, 2013

Heading to Rio for the 2013 World Congress on Huntington’s Disease

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Today I will travel to Brazil, my other home, to participate in the critical 2013 World Congress on Huntington’s Disease at the Sheraton Ri...
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Wednesday, September 04, 2013

Advocacy meets science and medicine: personal enrichment and a coping mechanism for Huntington’s disease

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In my effort to delay the inevitable onset of Huntington’s disease, I have strived to protect and nurture my brain through physical exercis...
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Tuesday, August 27, 2013

‘Predicting’ Huntington’s disease in the heartland

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To develop treatments for a disease, researchers and physicians first need to understand how its symptoms evolve and how they affect people...
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Wednesday, August 14, 2013

A gene-positive dad’s reflections on Huntington’s disease, parenthood, and the fragility of life

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Our “miracle daughter” Bianca, who tested negative in the womb for Huntington’s disease in early 2000, recently turned 13. As my wife...
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