At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Monday, July 22, 2019

‘Dancing at the Vatican,’ about Huntington’s families’ remarkable papal audience, premieres July 27

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Dancing at the Vatican , a short documentary featuring South American Huntington’s disease-afflicted families’ remarkable 2017 encounter ...
Wednesday, June 26, 2019

Roche restarts redesigned Phase 3 Huntington’s disease trial

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Three months after announcing it would reduce dosing in its historic Phase 3 Huntington’s disease clinical trial – and pausing for a rese...
Friday, June 14, 2019

Are pre-existing conditions returning, and Obamacare ending?

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Nine years ago, with passage of the Patient Protection and Affordable Care Act (ACA) under Democratic President Barack Obama, I celebrated...
Friday, May 24, 2019

My Huntington’s disease sister – and a hero who strives for the unthinkable

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Sharon Shaffer is my Huntington’s disease sister – and my hero. Afflicted with progressively worse HD symptoms the past 15 years, San...
Friday, May 03, 2019

‘Let’s Talk About Huntington’s Disease’: 2019 HD Awareness Month kicks off

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May is Huntington’s Disease Awareness Month. As in past years, the Huntington’s Disease Society of America (HDSA) is encouraging HD fami...
Tuesday, April 16, 2019

Comedian Rod Man’s heartfelt speech, Ramona Johnston’s death remind us of urgent need to cure Huntington’s disease

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In his raw, heartfelt speech in February about the devastation of Huntington’s disease in his extended family, comedian Rod “Rod Man” Tho...
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Gene Veritas
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