At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Monday, February 28, 2022

History, Huntington’s disease, and the survival of the human race

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  With thousands of people continuing to die from the COVID pandemic and the planetary climate crisis worsening, the Russi...
Tuesday, January 18, 2022

After setback, Roche to run new clinical trial with Huntington’s disease gene silencing drug

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  After halting dosing in the historic Phase 3 clinical trial for its Huntington’s disease gene silencing drug tominersen...
Monday, December 13, 2021

Huntington’s disease advocates, scientists generate hope after a difficult year in the search for treatments

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  In one of the most difficult years emotionally in the fight to conquer Huntington’s disease, advocates, scientists, and ...
Monday, November 01, 2021

A proud Huntington’s disease gene carrier’s message to his ‘miracle baby’ daughter on her senior year in college

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  When I tested positive for the Huntington’s disease genetic mutation in 1999, at 39, I was convinced I was doomed to rep...
Saturday, September 18, 2021

Bidding farewell to my ‘mind coach,’ a major ally in in my fight to avoid Huntington’s disease

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  In December, my psychotherapist will retire, ending for me a professional relationship of 24 years that became the most ...
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