At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Tuesday, August 30, 2022

After other firms’ setbacks, Prilenia readies for readout on Huntington’s drug that improves daily function

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  August brought more difficult news for the Huntington’s disease community with the halting of yet two more clinical tria...
Tuesday, August 02, 2022

Bridging the Huntington’s and early onset Alzheimer’s disease communities: a report from a family conference

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  In the quest to conquer chronic illnesses, members of disease communities need to build solidarity and learn from one an...
Sunday, June 26, 2022

With the constitutional right to abortion gone, an uncertain medical future for Huntington’s disease families

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With the U.S. Supreme Court’s radical toppling of long-standing abortion rights on June 24, families affected by Hunting...
Saturday, May 21, 2022

Surfing through life with the spirit of aloha

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To persevere against neurological diseases such as Huntington’s and the aging we all face, I have learned that it is esse...
Monday, April 11, 2022

CHDI keynoter Charlotte Raven reflects on her fight against Huntington’s disease and the dashed hopes of a clinical trial

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  Like many affected by Huntington’s disease, renowned British journalist Charlotte Raven longed for the chance to partic...
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