At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Friday, April 28, 2023

After another critical Huntington’s disease clinical trial proves negative, a time to embrace self-care and caregiving

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  A long-awaited clinical trial of a drug aimed at improving daily function   in the early stages of Huntington’s disease...
Sunday, December 25, 2022

#FightDiseaseNotWar

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This holiday season – with the Ukraine conflict having raised fears of a World War III and hundreds of millions of people...
Friday, December 16, 2022

In ‘Journal of Huntington’s Disease,’ my article analyzes record of my ‘realistic and unapologetic’ blog

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  Today the Journal of Huntington’s Disease (JHD) published my article “Striving for a Realistic and Unapologetic View of ...
Thursday, November 10, 2022

Ten years out of the terrible and lonely Huntington’s disease closet, as new research and investments offer hope for treatments

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  Ten years ago this month, I exited the “terrible and lonely Huntington’s disease closet” by publishing an essay on my pl...
Friday, October 21, 2022

After abrupt shutdown of Triplet Therapeutics, Huntington’s disease community regroups in the fight for therapies

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  Triplet Therapeutics, Inc., a Cambridge, MA-based start-up that aimed to transform the treatment of Huntington’s diseas...
Tuesday, September 20, 2022

Roche confirms second, more focused, trial of Huntington’s disease drug will start early next year

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  As anticipated , the pharmaceutical firm Roche will retest its Huntington’s disease gene silencing drug, tominersen, by...
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Gene Veritas
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