At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Showing posts with label Bill Johnston. Show all posts
Showing posts with label Bill Johnston. Show all posts
Tuesday, April 16, 2019

Comedian Rod Man’s heartfelt speech, Ramona Johnston’s death remind us of urgent need to cure Huntington’s disease

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In his raw, heartfelt speech in February about the devastation of Huntington’s disease in his extended family, comedian Rod “Rod Man” Tho...
Saturday, February 03, 2018

Faith in each other: sticking together through the challenges of Huntington's disease

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This article is dedicated to my lovely wife Regina and to HD caregivers. In 2017 my wife Regina and I marked 25 years of marriage wit...
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Friday, November 10, 2017

A time for hope: HDSA’s 50th anniversary, a record-setting gala, and the impending release of highly anticipated clinical trial results

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This year, Pope Francis’ historic “Hidden No More” audience with the Huntington’s disease community has understandably overshadowed anothe...
Tuesday, February 28, 2017

Staying when the Chargers leave: a leading Huntington’s disease advocate sets a gutsy, loving example

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After the San Diego Chargers’ recently announced move to Los Angeles , team public relations director and Huntington’s disease advocate Bil...
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Gene Veritas
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