At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Showing posts with label God. Show all posts
Showing posts with label God. Show all posts
Friday, January 25, 2019

Hacking humans, upgrading Homo sapiens: the role of the Huntington’s disease community and the consequences for life

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An influential book by best-selling historian Yuval Noah Harari,  Homo Deus: A Brief History of Tomorrow , looks broadly at potential medi...
Sunday, April 09, 2017

Preparing for the meeting with Pope Francis, a heartening milestone in the Huntington’s disease movement

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Ever since I received the electrifying invitation to meet Pope Francis I, my adrenaline has not stopped flowing. I will be one of 50...
2 comments:
Wednesday, February 05, 2014

Proof of heaven? My ongoing search for the meaning of Huntington’s disease in life and death

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The knowledge that I carry the Huntington’s disease genetic mutation and will inevitably develop devastating, ultimately deadly symptoms has...
5 comments:
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