At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Showing posts with label Guthrie. Show all posts
Showing posts with label Guthrie. Show all posts
Friday, November 10, 2017

A time for hope: HDSA’s 50th anniversary, a record-setting gala, and the impending release of highly anticipated clinical trial results

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This year, Pope Francis’ historic “Hidden No More” audience with the Huntington’s disease community has understandably overshadowed anothe...
Monday, June 11, 2012

The wholehearted embrace: my first HDSA convention

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For the first time since learning in 1995 that I was at risk for Huntington’s disease, I participated in the annual convention of the Hunt...
4 comments:
Monday, October 03, 2011

Making sense of Huntington’s organizations, and a call for unity

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HDSA, HDF, HDDW, CHDI: a mini alphabet soup of Huntington’s disease organizations serves the families afflicted by this devastating brain di...
3 comments:
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Gene Veritas
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