At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Showing posts with label advocate. Show all posts
Showing posts with label advocate. Show all posts
Sunday, July 12, 2026

Citing lack of efficacy, Roche halts two Huntington’s disease drug programs, while other initiatives forge ahead

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   In deeply disappointing news for the Huntington’s disease community and beyond, Roche  announced on July 9 that it stopped ...
Monday, August 31, 2020

In this electoral season, let’s highlight our natural role as caregivers and support care professionals

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In the Huntington’s disease community and many others facing debilitating diseases, caregiving is essential.   The COVID-19 pandemic has mad...
Wednesday, August 28, 2019

What if we could turn off the cause of Huntington’s disease?

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What if scientists could simply switch off a mutated gene causing a debilitating neurodegenerative disorder like Huntington’s disease? ...
Monday, July 22, 2019

‘Dancing at the Vatican,’ about Huntington’s families’ remarkable papal audience, premieres July 27

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Dancing at the Vatican , a short documentary featuring South American Huntington’s disease-afflicted families’ remarkable 2017 encounter ...
Sunday, May 21, 2017

Francis made a day of ‘superlatives’ for the Huntington’s disease community, says event co-organizer

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Pope Francis created a moment of “superlatives” for the Huntington’s disease community in his historic May 18 meeting with HD-afflicted fam...
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Gene Veritas
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