At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Showing posts with label caregivers. Show all posts
Showing posts with label caregivers. Show all posts
Wednesday, December 30, 2020

A veteran neurologist’s book offers tools for navigating the ‘turbulent world’ of Huntington’s disease

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  In the fight against any disease, affected individuals and health professionals can arm themselves with an invaluable t...
Thursday, February 28, 2019

CHDI’s chief scientist: ‘Not a time for the Huntington’s community to rest on its laurels’

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Given the unprecedented interest from biopharmaceutical firms and broadening range of approaches to attacking the disease, the need for t...
Saturday, February 03, 2018

Faith in each other: sticking together through the challenges of Huntington's disease

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This article is dedicated to my lovely wife Regina and to HD caregivers. In 2017 my wife Regina and I marked 25 years of marriage wit...
3 comments:
Monday, February 08, 2016

The little things that are really big: caregiving in families with Huntington’s disease

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The everyday kindness of the back roads more than makes up for the agony of the headlines – Charles Kuralt As a member of a Huntington...
1 comment:
Thursday, April 17, 2014

Woody Guthrie, Huntington’s disease, and our duty to improve caregiving

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By revisiting the huge, long-abandoned New Jersey mental hospital where radical songwriter and performer Woody Guthrie struggled for five ye...
5 comments:
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