At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Showing posts with label caregiving. Show all posts
Showing posts with label caregiving. Show all posts
Tuesday, February 27, 2024

At CHDI conference, advocates inspire acceleration of quest for Huntington’s disease therapies

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  With a record 420-plus participants, the 19th Annual Huntington’s Disease Therapeutics Conference got under way on Februa...
Friday, April 28, 2023

After another critical Huntington’s disease clinical trial proves negative, a time to embrace self-care and caregiving

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  A long-awaited clinical trial of a drug aimed at improving daily function   in the early stages of Huntington’s disease...
Monday, August 31, 2020

In this electoral season, let’s highlight our natural role as caregivers and support care professionals

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In the Huntington’s disease community and many others facing debilitating diseases, caregiving is essential.   The COVID-19 pandemic has mad...
Monday, January 23, 2017

Passing on the Huntington’s disease advocacy baton to the next generation

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In the fight against Huntington’s disease, a familial condition that can plague generations, each generation must pass on the advocacy bat...
3 comments:
Monday, February 08, 2016

The little things that are really big: caregiving in families with Huntington’s disease

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The everyday kindness of the back roads more than makes up for the agony of the headlines – Charles Kuralt As a member of a Huntington...
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