At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Showing posts with label coping. Show all posts
Showing posts with label coping. Show all posts
Sunday, March 14, 2021

Blog article No. 300: who exactly is Gene Veritas?

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  On January 10, 2005, I began the first post in this blog with a simple but consequential sentence: “My name is Gene Ver...
Tuesday, June 17, 2014

Fear of onset: the inescapable reality of the Huntington’s disease gene carrier

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As a carrier of the devastating and ultimately deadly genetic mutation for Huntington’s disease, I have worked hard to live as normally as ...
1 comment:
Tuesday, September 24, 2013

Reaching out to the ‘HD family’ at the World Congress on Huntington’s Disease

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As I returned on the plane from Brazil and the sixth World Congress on Huntington’s Disease, held September 15-18 in Rio de Janeiro, I was ...
3 comments:
Thursday, September 12, 2013

Heading to Rio for the 2013 World Congress on Huntington’s Disease

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Today I will travel to Brazil, my other home, to participate in the critical 2013 World Congress on Huntington’s Disease at the Sheraton Ri...
3 comments:
Wednesday, September 04, 2013

Advocacy meets science and medicine: personal enrichment and a coping mechanism for Huntington’s disease

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In my effort to delay the inevitable onset of Huntington’s disease, I have strived to protect and nurture my brain through physical exercis...
3 comments:
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