At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Showing posts with label family. Show all posts
Showing posts with label family. Show all posts
Friday, October 17, 2025

As hopes build about the first effective therapy, a Huntington’s disease family reunites

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  After 17 years of estrangement because of disagreements over family caregiving, in July I visited my hometown in Lake Cou...
Saturday, February 03, 2018

Faith in each other: sticking together through the challenges of Huntington's disease

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This article is dedicated to my lovely wife Regina and to HD caregivers. In 2017 my wife Regina and I marked 25 years of marriage wit...
3 comments:
Wednesday, May 25, 2016

Upbeat Huntington’s disease film, featuring undaunted family, aims for 10 million viewers

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The Longest Journey  – a new feature-length documentary film about Huntington’s disease – portrays the undaunted Shaffer family in an epi...
2 comments:
Monday, April 04, 2016

Just living life: a focus on what matters most in coping with the risk of Huntington’s disease

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As a carrier of the Huntington’s disease gene who’s reached the age of 56 without apparent HD symptoms, I believe that the emoti...
2 comments:
Sunday, April 13, 2014

Reshaping my career and life in the face of Huntington’s disease (and a note of hope)

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In the second half of the 1990s, after learning of my mother’s diagnosis for Huntington’s disease, the 50-50 chance of having the genetic m...
2 comments:
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