At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Showing posts with label nursing home. Show all posts
Showing posts with label nursing home. Show all posts
Monday, February 08, 2021

My arduous, lucky, and enlightening journey since my mother’s death from Huntington’s disease 15 years ago

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  February 13, 2021, will mark fifteen years since my mother Carol Serbin died in 2006 after a two-decade fight against Hu...
Sunday, March 15, 2020

In times of crisis, Huntington’s and other chronic disease communities provide examples of fortitude

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For individuals and families facing Huntington’s and other chronic diseases, daily living often seems like nonstop crisis. These communit...
Tuesday, February 28, 2017

Staying when the Chargers leave: a leading Huntington’s disease advocate sets a gutsy, loving example

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After the San Diego Chargers’ recently announced move to Los Angeles , team public relations director and Huntington’s disease advocate Bil...
Monday, February 08, 2016

The little things that are really big: caregiving in families with Huntington’s disease

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The everyday kindness of the back roads more than makes up for the agony of the headlines – Charles Kuralt As a member of a Huntington...
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Thursday, April 17, 2014

Woody Guthrie, Huntington’s disease, and our duty to improve caregiving

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By revisiting the huge, long-abandoned New Jersey mental hospital where radical songwriter and performer Woody Guthrie struggled for five ye...
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Gene Veritas
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