At Risk for Huntington's Disease

HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

Showing posts with label symptoms. Show all posts
Showing posts with label symptoms. Show all posts
Sunday, July 12, 2026

Citing lack of efficacy, Roche halts two Huntington’s disease drug programs, while other initiatives forge ahead

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   In deeply disappointing news for the Huntington’s disease community and beyond, Roche  announced on July 9 that it stopped ...
Sunday, May 17, 2026

For Huntington’s Disease Awareness Month, reflections on teaching about this devastating disorder at the University of San Diego

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   First proclaimed by President George H. W. Bush in 1991, Huntington’s Disease Awareness Month (May) encourages affected fa...
Friday, October 17, 2025

As hopes build about the first effective therapy, a Huntington’s disease family reunites

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  After 17 years of estrangement because of disagreements over family caregiving, in July I visited my hometown in Lake Cou...
Wednesday, September 24, 2025

Wonderful news: uniQure’s one-and-done drug slows Huntington’s disease

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  AMT-130 , a one-time gene therapy developed by uniQure , has successfully slowed the progression of Huntington’s disease....
Sunday, July 27, 2025

Brain donation programs – now perhaps at risk of losing funding – are key to a Huntington's disease cure: a family's story

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  In July 2022 Dorlue Schulte of San Diego died at home after a long struggle with Huntington’s disease. To benefit HD rese...
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Gene Veritas
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