For those of us affected by Huntington’s disease or at risk for it, the fight against the disorder begins by taking care of ourselves.
Gene Veritas (aka Kenneth P. Serbin) writing on an experimental tablet (above) and standing on a platform to detect balance problems (below) (photos by Ayesha Haque)
Enroll-HD contributes directly to the quest for treatments. The larger the number of potential clinical trial volunteers, the greater the chance that trial administrators can enlist the required number for each trial. The number of HD trials has increased each year, increasing the demand for volunteers. Without the trials and the volunteers, scientists can’t test treatments.
Caregivers, the "HD warriors" who enter the trenches each day, must also seek opportunities for respite.